Participant Privacy Information
Imperial College London is the sponsor for the Airwave Health Monitoring Study Tissue Bank based in the United Kingdom. Its REC reference is 19/NW/0054 and it was most recently granted approval by the North West - Haydock Research Ethics Committee on 22nd February 2019.
We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. Imperial College London will keep identifiable information about you for:
- 30 years after the study has finished in relation to data subject consent forms.
- 30 years after the study has completed in relation to primary research data.
Further information on Imperial College London’s retention periods may be found here.
Imperial College London’s data protection information may be found at its website, but this is the notice most applicable to the information provided by participants and therefore takes precedence for all purposes described hereunder.
Your usual statutory rights to access, change or move your information are limited, because of exceptions applicable to some types of research, and also because we need to manage your information in specific, lawful ways in order for the research to be reliable and accurate.
As a university we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation, we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study.
Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.
Access to and Use of Data
We may transfer your data to trusted partners (companies and public-sector organisations) working under a data-processing-agreement in order to operate the study efficiently and reliably. The purposes for which we would transfer your data include:
- Offering and operating health-screening services on behalf of the Study;
- Deriving information about your health by the analysis of the data collected at the health-screen, such as interpretation of the electrocardiogram (heart-trace);
- Collection of data using online surveys and questionnaires;
- Fulfil the posting of correspondence such as newsletters, health-screen feedback and invitations to join research projects approved by the Study’s Access Committee;
- To ensure the accuracy of analyses carried out on your biological samples using data such as age and gender;
- Linkage to your health records;
- Making your data available in pseudonymised form (that is, where your personal identifiers have been removed) to researchers and institutions that have been approved by the Study’s Access Committee.
There may be a requirement to transfer information to countries outside the European Economic Area (for example, to a research partner). Where this information contains your personal data, Imperial College London will ensure that it is transferred in accordance with data protection legislation. If the data is transferred to a country which is not subject to a European Commission (EC) adequacy decision in respect of its data protection standards, Imperial College London will enter into a data sharing agreement with the recipient organisation that incorporates EC approved standard contractual clauses that safeguard how your personal data is processed.
If you wish to raise a complaint on how we have handled your personal data or if you want to find out more about how we use your information, please contact Imperial College London’s Data Protection Officer via email at [email protected], via telephone on 020 7594 3502 and via post at Imperial College London, Data Protection Officer, Faculty Building Level 4, London SW7 2AZ.
If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO). The ICO does recommend that you seek to resolve matters with the data controller (us) first before involving the regulator.