HRA Transparency Statement

Imperial College London is the sponsor for the Airwave Health Monitoring Study Tissue Bank based in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly.

Imperial College London will keep identifiable information about you for:

• 30 years after the study has finished in relation to data subject consent forms.
• 30 years after the study has completed in relation to primary research data.

Your usual statutory rights to access, change or move your information are limited, because of exceptions applicable to some types of research, and also because we need to manage your information in specific, lawful ways in order for the research to be reliable and accurate.

You can find out more about how we use your information by contacting the Airwave research team at [email protected].

Imperial College London will collect information about you for this research study from NHS Digital, ONS, NHS Scotland and NHS Wales. We will share your name, address, gender and date of birth with these organisations in order to obtain your NHS Number, CHI Number (Scotland), medical records and death certificates, which are regarded as a special category of information. This may include access to your medical notes and other health-related records now and in the future, even if you can no longer make decisions for yourself, or after your death.

Where you have consented, we may access your police personnel records in order to verify when you were employed by the police service, when you left service, and any periods when you were absent from work because of ill-health. We may also have access to data that records your usage of the Airwave system. We will use this information to investigate the possible health effects related to use of Airwave.

When you agree to take part in a separate research study, the information about your health and care may be provided to researchers running other research studies in this organisation and in other organisations. These organisations may be universities, NHS organisations or companies involved in health and care research in this country or abroad. Your information will only be used by organisations and researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research.

Your information may be used for research in any aspect of health or care, and may be combined with information about you from other sources held by researchers, the NHS or government.

Where this information could identify you, the information will be held securely with strict arrangements about who can access the information. The information will only be used for the purpose of health and care research or to contact you about future opportunities to participate in research. It will not be used to make decisions about future services available to you, such as insurance.